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Advancing Tick-Borne Disease Research: Insights & Progress Event 30 April

Support Tick-Borne Disease Research in Australia

Support pioneering research that will provide our patients with the effective treatment they deserve and help unravel one of medicine's toughest challenges.
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Help us tackle the growing crisis of tick-borne disease and provide our patients with the treatment they deserve.

Historically, Australia hasn’t been heavily involved in tick-borne disease research, as the ticks responsible aren’t endemic to the country. Our researchers are looking to change that, and by using the latest and greatest technology, they hope to solve one of medicine’s trickiest problems.

Tick bites pose a conundrum because although the majority of them are relatively harmless, some can lead to the onset of a severe illness. These tiny creatures can serve as vectors for all sorts of harmful pathogens such as viruses, bacteria, and even parasites. Unlike mosquitoes, ticks will stay attached to their hosts for prolonged periods, drastically increasing the likelihood of transmitting a disease.

The Northern Sydney Local Health District (NSLHD) is pioneering novel research into both the diagnosis and treatment of these conditions. With the help of the community, we can support tick-borne disease research and provide patients with a tried and tested treatment protocol.

Every tick-borne research donation helps bring together our brightest and best minds to answer the most difficult questions.

Read Case for Support
Tick on a leaf
Wednesday 30 April 2025, 5 – 7 PM

Advancing Tick-Borne Disease Research: Insights & Progress Event

Be part of a groundbreaking event where top researchers, healthcare experts, and advocates come together to share the latest advancements in tick-borne disease research. Gain valuable insights into new diagnostics, treatments, and prevention strategies, and join the movement shaping the future of care.

This isn’t just an update – it’s a call to action.

Register now

Lilli, Janet & Chaya’s journeys

For years, Lilli, Janet, and Chaya battled relentless fatigue, pain, and uncertainty after being bitten by a tick – searching for answers but finding none. Their health declined, their energy vanished, and life as they knew it came to a halt. Everything changed when they joined a groundbreaking tick-borne disease research study at Royal North Shore Hospital. Through this program, they finally received the treatment they so desperately needed – treatment that gave them their lives back. Now thriving and active once more, they are fierce advocates for awareness, determined to share their stories so others can find help sooner.

 

Lilli’s Story

Janet’s Story

Chaya’s Story

Advancing research and diagnostics for tick-borne diseases in Australia

In Australia, our understanding of tick-borne diseases is limited, as monitoring for these conditions typically only occurs under specific circumstances, such as with tick typhus or spotted fever. This challenge is further compounded by the limited availability of diagnostic tests, meaning that potential tick-borne diseases are often either not recognised or misdiagnosed initially.

Our research team is undertaking a pioneering clinical research program, with patients at the centre of the study. Through this program, we aim to:

Focus on data and sample collection to support research and diagnostic development

Gain insights from relevant medical professionals, healthcare providers, and communities

Establish a preferred diagnostic pathway for patients in Australia

Develop validated diagnostic tests for tick-borne diseases

Develop a holistic, multi-disciplinary care approach for patients

Raise awareness and provide education to both the general public and medical/allied health professionals

First-of-their-kind clinical trials 

There is currently a significant gap in our collective understanding of how to identify and treat tick-borne diseases. Unfortunately, this means that our healthcare facilities are ill-equipped to treat some of the more severe cases that they face. 

This is why we’re spearheading a novel clinical trial that will actively monitor every aspect of a tick-borne disease patient’s experience. To begin with, 80 people will be enrolled on the program based on either their medical history or a referral from a specialist.  

By conducting the most comprehensive study ever carried out in Australia, we’re hoping to establish new diagnostic markers, develop new treatments and create a rigorous clinical care protocol.  

The research program can be broken down into 4 distinct stages:

Stage 1: Patients provide us with a variety of clinical samples, which will subsequently be examined using a pair of diagnostic kits. One of these kits will be supplied by the global industry leader, while the other will be taken directly from Australian hospitals.  

Stage 2: The results from each of the diagnostic kits will be compared and contrasted with one another. This will provide the Australian healthcare system with invaluable information about the state of testing in our healthcare facilities.  

Stage 3: The genetic information from each of the samples will be analysed by a team of Australia’s leading bioinformaticians. By identifying the site of the human genome that is linked to the spread of the disease, our researchers will be able to understand what microbes are causing it.  

Stage 4: By monitoring a variety of biomarkers, the research team will establish how the cellular activity of a tick-borne disease patient differs from the rest of the population. This will provide healthcare facilities across the country with new ways to manage and control symptoms.  

Research lab
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Why Support Tick-Borne Research

Our research will inform and provide evidence to support the creation of medically appropriate treatment options and ultimately the creation of clinical treatment guidelines for patients in Australia.
 

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